Archive for the ‘Resources’ Category

Being an active part of your own health care team, part I

Peo­ple who have chron­ic or com­plex health issues need to take an active role in their own health care. That doesn’t come nat­u­ral­ly to every­one, and in fact it runs counter to the tra­di­tion­al way of inter­act­ing with “Doc­tor God” that I, for one, learned from my own par­ents. In this series, we’ll talk about […]

July 16, 2012 · cyn · One Comment
Tags: , , , , ,  · Posted in: Managing Your Healthcare, Medications, Resources

Fight Brain Fog!

Or, at the very least, give your­self more resources to fight it! Cog­ni­tive abil­i­ties are like mus­cles, in that they have to be devel­oped and exer­cised reg­u­lar­ly, even stretched to keep them flex­i­ble. We can’t nec­es­sar­i­ly avoid the cog­ni­tive deficits that come with some of our ill­ness­es, or as a side effect of our med­ica­tions. […]

July 15, 2012 · cyn · One Comment
Tags: , , , , , , , , , , , , ,  · Posted in: Resources

Hope for Pain Relief

I’ve known of mind­ful­ness prac­tices for sev­er­al years, and read Full Cat­a­stro­phe Liv­ing: Using the Wis­dom of Your Body and Mind to Face Stress, Pain, and Ill­ness by Jon Kabat-Zinn sev­er­al years ago. It is one of the books I’ve rec­om­mend­ed on this blog in the past. I have only recent­ly, though, tru­ly com­mit­ted myself […]

March 23, 2012 · cyn · No Comments
Tags: , , ,  · Posted in: Fibromyalgia, Pain, Resources, treatments

Long term opiate use safe; One woman’s experience with Savella

There are two great arti­cles from Karen Lee Richards in HealthCentral’s Chron­ic Pain Con­nec­tion newslet­ter today. The first, Long-Term Opi­oid Ther­a­py – What Are the Effects?, brings us the results of Dr. For­est Tennant’s ground-break­ing study. He eval­u­at­ed 24 chron­ic pain patients from 30 to 79 years old who had been using opi­oids for 10 […]

December 3, 2009 · cyn · 6 Comments
Tags: , , , ,  · Posted in: Fibromyalgia, Pain, Resources, treatments

Tips and Tools for Working From Bed

I’ve nev­er encoun­tered this web site before, but it was linked from a blog car­ni­val, and the arti­cle is pret­ty good: Because Sit­ting up is for Suck­ers: 70+ Tools, Tips and Hacks to Work from Bed I still miss my lap­top! And I have a pret­ty nice set­up, but can’t help drool­ing at this: the […]

June 27, 2008 · cyn · No Comments
Tags: , ,  · Posted in: employment, Resources

Review: Women, Work and Autoimmune Disease

I read Women, Work and Autoim­mune Dis­ease by Ros­alind Joffe and Joan Fried­lan­der a few months back, but for some rea­son my review on Ama­zon nev­er showed up, and I didn’t think to keep a copy for myself. It seems to final­ly be there now, so I’ll put it here, too (slight­ly expand­ed). This book […]

May 29, 2008 · cyn · One Comment
Tags: , , , ,  · Posted in: disability, employment, Resources

Free Screen Magnifier Software

This isn’t where I usu­al­ly get geeky, but I think this util­i­ty might be use­ful to many read­ers. I get notices from the Give­away of the Day and Game Give­away Of the Day sites each day as to what they have avail­able that day. They make arrange­ments with var­i­ous soft­ware pub­lish­ers to dis­trib­ute com­mer­cial soft­ware […]

February 23, 2008 · cyn · No Comments
Tags: , , ,  · Posted in: Resources, Technical

The Value of Education for Chronic Illness Patients

Paula Kamen, author of All In My Head, talks about the val­ue of edu­ca­tion in cop­ing with chron­ic ill­ness in an excel­lent edi­to­r­i­al in the New York Times. Leav­ing the Rab­bit Hole. This pas­sage, in par­tic­u­lar, spoke to me: The worst thing, to me, about hav­ing a non-stop mul­ti-year headache isn’t nec­es­sar­i­ly the pain. Or […]

February 19, 2008 · cyn · One Comment
Tags: , , , , ,  · Posted in: Education, Pain, Resources

New Resource: Curehunter.com

Cure­hunter is an inter­est­ing addi­tion to our online tool­box. It’s a visu­al med­ical dic­tio­nary. Here’s part of what it gives me when I look up fibromyal­gia:

November 24, 2007 · cyn · No Comments
Tags: , , , ,  · Posted in: Fibromyalgia, Resources

Episode 4

Episode 4 The first episode in the new, short­er for­mat, record­ed on my very own micro­phone. Thank you for your patience in wait­ing for it! Most of today’s show is about audio enter­tain­ment and infor­ma­tion, which is great when the fatigue is so bad that lis­ten­ing is one of the few things we can do. […]

October 29, 2006 · cyn · No Comments
Posted in: Chronic Fatigue Syndrome, Fibromyalgia, Pain, Podcast, Relaxation, Resources