Archive for the ‘Chronic Fatigue Syndrome’ Category

Will there be a cure?

I respond­ed to a post in a friend’s Live­Jour­nal, in which she talked about a friend of hers who has just been diag­nosed with chron­ic fatigue syn­drome. Her friend was very upset that my friend didn’t believe there is a cure for fibromyal­gia or CFS (at least, there isn’t one right now). This is part […]

December 11, 2006 · cyn · 14 Comments
Posted in: Chronic Fatigue Syndrome, Fibromyalgia

Episode 4

Episode 4 The first episode in the new, short­er for­mat, record­ed on my very own micro­phone. Thank you for your patience in wait­ing for it! Most of today’s show is about audio enter­tain­ment and infor­ma­tion, which is great when the fatigue is so bad that lis­ten­ing is one of the few things we can do. […]

October 29, 2006 · cyn · No Comments
Posted in: Chronic Fatigue Syndrome, Fibromyalgia, Pain, Podcast, Relaxation, Resources

Get well soon … or, be eternally damned!

Great car­toon from Ragged Edge. I want to get that notepad print­ed up! The mag­a­zine also has an excel­lent blog and some very good arti­cles. I just fin­ished read­ing their spot­light on invis­i­ble dis­abil­i­ties, which linked to the car­toon. There’s plen­ty of excel­lent read­ing mate­r­i­al on their site.

August 31, 2006 · cyn · 2 Comments
Posted in: Chronic Fatigue Syndrome, Fibromyalgia, Resources

Consideration for ourselves, changes in podcast format

It seems that many of us who suf­fer from fibromyal­gia and chron­ic fatigue are per­fec­tion­ists. I know that I am. One of fibromyalgia’s hard­er lessons has been pac­ing myself and adjust­ing to chang­ing (but always low­er than before) ener­gy lev­els and con­cen­tra­tion. I know I’m not the only one who isn’t as con­sid­er­ate of myself […]

August 29, 2006 · cyn · No Comments
Posted in: Chronic Fatigue Syndrome, Fibromyalgia, Podcast

Flowers Fighting Fibromyalgia!

Orig­i­nal­ly uploaded by ChatOmbre. This is a one flower of the love­ly bou­quet in my liv­ing room right now. Sam knows how much I val­ue fresh flow­ers, so he usu­al­ly brings them to me every week or two. Katie knows that I adore them, so she pho­tographs them, allow­ing me to enjoy them even longer. […]

August 5, 2006 · cyn · 2 Comments
Posted in: Beauty, Chronic Fatigue Syndrome, Fibromyalgia, Pain, Relaxation

The glory of pain management

I’ve been almost afraid to talk about it, but last week my pain man­age­ment doc­tor pre­scribed break­through pain med­ica­tion for the first time. I’ve been leery of tak­ing it too often, so I’m tak­ing it once every few days instead of once a day as direct­ed. Mir­a­cle of mir­a­cles, though: all the pain except for […]

July 19, 2006 · cyn · 8 Comments
Posted in: Chronic Fatigue Syndrome, Fibromyalgia, Pain

Stress during pregnancy may lead to increased risk of fibromyalgia for baby girls

From a Uni­ver­si­ty of Pitts­burgh School of Med­i­cine Press Release about find­ings being pre­sent­ed at the Inter­na­tion­al Con­gress of Neu­roen­docrinol­o­gy June 19–22, 2006: Stress­ful or trau­mat­ic events expe­ri­enced dur­ing preg­nan­cy can have long-last­ing effects on the fetus, yet these effects may not become appar­ent until many years lat­er, accord­ing to a study sug­gest­ing that girls […]

June 29, 2006 · cyn · No Comments
Posted in: Chronic Fatigue Syndrome, Fibromyalgia, From the news

How do you explain it?

How do you explain your ill­ness to those who don’t have it? While I haven’t come up with a good way to explain chron­ic fatigue syn­drome, I describe fibromyal­gia as a full-body migraine. Any­one who has ever had a migraine under­stands imme­di­ate­ly, and most peo­ple at least know some­one who does have dis­abling migraines. If […]

June 7, 2006 · cyn · One Comment
Posted in: Chronic Fatigue Syndrome, Fibromyalgia

FMS/chronic illness blogs/casts?">Other FMS/chronic illness blogs/casts?

I’ll record episode 3 as soon as my sound tech (aka Sam, my part­ner) is avail­able. Right now, though, I’m in the mood to plump up my blogroll. Sug­gest oth­er blogs and pod­casts about fibromyal­gia, chron­ic fatigue, or chron­ic ill­ness, please! What are your favorites? Do you have one your­self? Tell me about it!

June 4, 2006 · cyn · No Comments
Posted in: Blogroll, Chronic Fatigue Syndrome, Fibromyalgia, Resources

What does “Fibrant” mean?

It’s a word that I made up, com­bin­ing “vibrant” and “fibromyal­gia.” A fibrant life is one that is well-round­ed, bal­anced, as healthy as pos­si­ble, and has more joy than pain in it. The goal of this blog and pod­cast is to spread fibran­cy and to sup­port each oth­er in main­tain­ing our fibrant lives. I hope […]

May 9, 2006 · cyn · No Comments
Posted in: Blogroll, Chronic Fatigue Syndrome, Fibromyalgia